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A randomized controlled pilot study to evaluate a technology platform for the assisted living of people with dementia and their carers

Authors

Torkamani, Mariam, McDonald, Louise, Saez Aguayo, Ignasi, Kanios, Christos, Katsanou, Maria-Nefeli, Madeley, Laura, Limousin, Patricia D., Lees, Andrew J., Haritou, Maria, Jahanshahi, Marjan

Journal

Journal Of Alzheimer's Disease: JAD, Volume: 41, No.: 2, Pages.: 515-523

Year of Publication

2014

Abstract

The use of telemedicine is becoming increasingly popular in assisting with the home management of People with Dementia (PwD) by offering services to the carers that may enhance their ability to care for their relative for longer. A computerized platform, ALADDIN, was evaluated in its usefulness to reduce carer burden and distress and to improve their quality of life, in an attempt to delay institutionalization of PwD. ALADDIN offers educational material about dementia to carers and provides the opportunity to contact other carers and clinicians. ALADDIN also facilitates remote monitoring of the PwD and their carers by the clinicians to enable speedy delivery of appropriate intervention. The ALADDIN platform was piloted at three European sites, and used by thirty carers of PwD living in the community (platform group). The platform group and a control group of thirty PwD and their carers were assessed at baseline, 3 months, and 6 months. The results showed a significant improvement in the quality of life of the carers in the platform group, with some reduction in carer burden and distress. The platform was useful in monitoring the patients and facilitating contact with other professionals. Access to and use of the ALADDIN platform was rated positively by carers and clinicians. The ALADDIN platform’s usefulness and applicability for prolonging the home management of PwD are discussed.;

Keywords

aged, caregivers, carer burden, carers, communication, computerised, computers, dementia, distress, europe, female, for, health education, home care services, humans, institutionalization, instrumentation, male, methods, middle aged, pilot projects, platform, psychology, quality of life, social support, telecare, telemedicine, therapy, time factors, treatment outcome

Countries of Study

Greece, Spain, UK

Types of Dementia

Dementia (general / unspecified)

Types of Study

Randomised Controlled Trial

Type of Outcomes

Carer Burden (instruments measuring burden), Quality of Life of Carer

Type of Interventions

Intervention for Carers, Technology (telephone, telecare, telehealth, robots, GPS)

Carer Focussed Interventions

Information and Advice, Signposting / Brokerage