Hilgeman, Michelle M., Allen, Rebecca S., Snow, A. Lynn, Durkin, Daniel W., DeCoster, Jamie, Burgio, Louis D.

Objectives: The purpose of this pilot study was to conduct limited-efficacy testing of the newly developed Preserving Identity and Planning for Advance Care (PIPAC) intervention on self-reported and proxy-reported emotional and health-related outcomes of individuals in the early stages of dementia.; Method: A two-group comparison design was implemented. Blocked randomization was used to assign individuals […]

Sampson, Elizabeth L., Jones, Louise, Thuné-Boyle, Ingela C. V., Kukkastenvehmas, Riitta, King, Michael, Leurent, Baptiste, Tookman, Adrian, Blanchard, Martin R.

Patients with advanced dementia often receive poor end-of-life care. We aimed to design and pilot a palliative care and advance care plan (ACP) intervention. Patients had undergone emergency hospital admission and had severe dementia. The intervention consisted of a palliative care patient assessment which informed an ACP discussion with the carer, who was offered the […]

Volandes, Angelo E., Paasche-Orlow, Michael K., Barry, Michael J., Gillick, Muriel R., Minaker, Kenneth L., Chang, Yuchiao, Cook, E. Francis, Abbo, Elmer D., El-Jawahri, Areej, Mitchell, Susan L.

Objective: To evaluate the effect of a video decision support tool on the preferences for future medical care in older people if they develop advanced dementia, and the stability of those preferences after six weeks.; Design: Randomised controlled trial conducted between 1 September 2007 and 30 May 2008. Setting Four primary care clinics (two geriatric […]

Reinhardt, Joann P., Chichin, Eileen, Posner, Laurie, Kassabian, Simon

Family members of persons with advanced dementia may be asked to make complex treatment decisions without having adequate knowledge regarding the risks and benefits. This 6-month, prospective, randomized trial tested the effect of an intervention consisting of a face-to-face, structured conversation about end-of-life care options with family members of nursing home residents with advanced dementia. […]