This site uses cookies to measure how you use the website so it can be updated and improved based on your needs and also uses cookies to help remember the notifications you’ve seen, like this one, so that we don’t show them to you again. If you could also tell us a little bit about yourself, this information will help us understand how we can support you better and make this site even easier for you to use and navigate.

Service users’ involvement in the development of a maintenance cognitive stimulation therapy (CST) programme: A comparison of the views of people with dementia, staff and family carers

Authors

Aguirre, E., Spector, A., Streater, A., Burnell, K., Orrell, M.

Journal

Dementia: The International Journal of Social Research and Practice, Volume: 10, No.: 4, Pages.: 459-473

Year of Publication

2011

Abstract

This study reports on the process of developing a maintenance programme manual following the Medical Research Council guidelines representing the ‘phase I’ or modelling. This study uses an inductive thematic analysis approach to examine user perceptions on the maintenance cognitive stimulation therapy (CST) programme. Three focus groups were carried out with people with dementia, three with staff, and three with family carers of people with dementia. In total 17 people with dementia, 13 staff and 18 family carers took part in separate focus groups. The main findings from the user focus clearly supports the recent draft NICE guidelines on dementia (NICE-SCIE, 2006) that states that all people with mild/moderate dementia should be ‘given the opportunity to participate in a structured group of cognitive stimulation programme’. People with dementia highly valued the opportunity to take part in a mental stimulating group programme and found it vital in keeping them healthy and active. Most family carers and staff were very positive but expressed concerns about the effectiveness of this type of programme and gave real life examples where the idea of ‘use it or lose it’ did not apply. Results from the focus groups will be used in order to produce a new version of the maintenance CST draft manual and this will be evaluated in a large randomized controlled trial (RCT). (PsycINFO Database Record (c) 2012 APA, all rights reserved). (journal abstract)

Bibtex Citation

@article{Aguirre_2011, doi = {10.1177/1471301211417170}, url = {http://dx.doi.org/10.1177/1471301211417170}, year = 2011, month = {nov}, publisher = {{SAGE} Publications}, volume = {10}, number = {4}, pages = {459--473}, author = {E. Aguirre and A. Spector and A. Streater and K. Burnell and M. Orrell}, title = {Service users{textquotesingle} involvement in the development of a maintenance cognitive stimulation therapy ({CST}) programme: A comparison of the views of people with dementia, staff and family carers}, journal = {Dementia} }

Keywords

caregivers, cognitive therapy, dementia, family, involvement, maintenance cognitive stimulation therapy programs, service user involvement

Countries of Study

UK

Types of Dementia

Dementia (general / unspecified)

Types of Study

Focus Group

Type of Outcomes

Satisfaction with care/services