This database contains 14 studies, archived under the term: "End of Life Care"
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Pain and distress in advanced dementia: choosing the right tools for the job
Objective: There is a concern that pain is under-recognized in dementia. However, there may be other causes of distress. We wished to evaluate the utility of a distress tool and a pain tool.; Methods: Nursing home residents with advanced dementia were observed using pain (Pain Assessment in Advanced Dementia scale (PAINAD)) and distress (Disability Distress […]
Palliative assessment and advance care planning in severe dementia: an exploratory randomized controlled trial of a complex intervention
Sampson, Elizabeth L.,
Jones, Louise,
Thuné-Boyle, Ingela C. V.,
Kukkastenvehmas, Riitta,
King, Michael,
Leurent, Baptiste,
Tookman, Adrian,
Blanchard, Martin R.
Patients with advanced dementia often receive poor end-of-life care. We aimed to design and pilot a palliative care and advance care plan (ACP) intervention. Patients had undergone emergency hospital admission and had severe dementia. The intervention consisted of a palliative care patient assessment which informed an ACP discussion with the carer, who was offered the […]
Video decision support tool for advance care planning in dementia: randomised controlled trial
Volandes, Angelo E.,
Paasche-Orlow, Michael K.,
Barry, Michael J.,
Gillick, Muriel R.,
Minaker, Kenneth L.,
Chang, Yuchiao,
Cook, E. Francis,
Abbo, Elmer D.,
El-Jawahri, Areej,
Mitchell, Susan L.
Objective: To evaluate the effect of a video decision support tool on the preferences for future medical care in older people if they develop advanced dementia, and the stability of those preferences after six weeks.; Design: Randomised controlled trial conducted between 1 September 2007 and 30 May 2008. Setting Four primary care clinics (two geriatric […]
Using video images to improve the accuracy of surrogate decision-making: a randomized controlled trial
Introduction: When patients are unable to make important end-of-life decisions, doctors ask surrogate decision makers to provide insight into patients’ preferences. Unfortunately, multiple studies have shown that surrogates’ knowledge of patient preferences is poor. We hypothesized that a video decision tool would improve concordance between patients and their surrogates for end-of-life preferences.; Objective: To compare […]
Hospice use and outcomes in nursing home residents with advanced dementia
Objectives: To identify characteristics of nursing home (NH) residents with advanced dementia and their healthcare proxies (HCPs) associated with hospice referral and to examine the association between hospice use and the treatment of pain and dyspnea and unmet needs during the last 7 days of life.; Design: Prospective cohort study.; Setting: Twenty-two Boston-area NHs.; Participants: […]
Quality of life in nursing home residents with advanced dementia
Objectives: To examine quality of life (QOL) in nursing home (NH) residents with advanced dementia and identify correlates of QOL near the end of life.; Design: Cross-sectional data derived from NH records, interviews with residents’ surrogate decision-makers, QOL ratings by NH caregivers, and assessment of residents’ cognitive function.; Setting: Three NHs in Maryland.; Participants: A […]
Improved end-of-life care for patients with dementia: greater family satisfaction and possibly greater end-of-life comfort
van der Steen, Jenny T.,
van Soest-Poortvliet, Mirjam C.,
Gijsberts, Marie-José H. E.,
Onwuteaka-Philipsen, Bregje D.,
Achterberg, Wilco P.,
Ribbe, Miel W.,
Deliens, Luc,
de Vet, Henrica C. W.
Objective: To analyse possible trends in families’ evaluations of the quality of end-of-life care and the quality of dying in dementia.; Design: Analysis of individual patient data from 3 studies (2 solely retrospective (after death) and 1 partly prospective).; Method: We combined data on 372 residents with dementia from 38 nursing homes and 13 residential […]