Organisations
Alzheimer’s Research UK
Alzheimer’s Research UK offers information and advice through its resources and Infoline.
Website: www.alzheimersresearchuk.org
Dementia Research Infoline: 0300 111 5 111
Email: infoline@alzheimersresearchuk.org
The Alzheimer’s Society
The Alzheimer’s Society offers information, advice and support for people with dementia and their families through its resources and local groups.
Website: www.alzheimers.org.uk
Helpline: 0300 222 1122
Email: enquiries@alzheimers.org.uk
Carers Direct
An online and telephone service providing information advice and support for carers.
Website: www.nhs.uk/carersdirect
Carers Direct helpline: 0300 123 1053
Carers Trust
Carers Trust offers information and support for carers and you can find out on their website details of your local carer centre.
Website: www.carers.org
Carers UK
Carers UK offers information and support to carers and campaigns for better help for those who take on a caring role.
Website: www.carersuk.org
Adviceline: 0808 808 7777
Email: email@carersuk.org
Dementia UK
Offer specialist one-to-one support and expert advice to families living with dementia through their specialist Admiral Nurses.
Website: www.dementiauk.org
Admiral Nursing DIRECT Helpline: 0845 257 9406
Email: direct@dementiauk.org
Frontotemporal Dementia (FTD) Support Group website
Provides information and support to people with FTD, and their families, friends and healthcare professionals.
Website: http://www.ucl.ac.uk/drc/ftdsupport
Email: jill.walton@ucl.ac.uk
Lewy Body Society
Information and support on Dementia with Lewy Bodies (DLB)
Website: http://www.lewybody.org
Information or Help: 0131 473 2385
Email: info@lewybody.org
Young Dementia UK
A charity to support people whose lives are affected by young onset dementia. They have a list of services that are tailored to the needs of people with young onset dementia.
Website: https://www.youngdementiauk.org
View and hear about people’s experience of dementia
The Dementia Diaries project involves people living with dementia keeping an audio record of their daily life with dementia.
Website: http://dementiadiaries.org
Health Talk Online
The experience of caring for someone with dementia by seeing and hearing people share their personal stories on film
Website : http://www.healthtalk.org/peoples-experiences/nerves-brain/carers-people-dementia/topics
Take part in dementia research
Join Dementia Research
‘Join dementia research’ makes it easy for people to register their interest in dementia research, so that they can be contacted about relevant research studies. The goal is to make it possible for anyone and everyone who wants to be involved in dementia research to get the chance to do so.
Website: https://www.joindementiaresearch.nihr.ac.uk/help
Resources
Involve Jargon Buster